Patients and Public
BIRD have always been committed to encouraging greater public awareness of bone and joint diseases and helping patients, their friends, family and colleagues understand their condition.
This year we have launched our 'Patient & Public Engagement' initiative that will specifically focus on setting up opportunities to connect, learn & share. We know through previous patient feedback, what great value there is in people talking to others who understand what they are going through. Our goal is to run a series of events that will not only help people connect, share ideas and tips for coping but also help support existing and set up new local support groups to make a positive difference to people's lives.
In addition we aim to set up more of the popular disease-specific information days that will feature talks from experts in the field and provide the information for patients that they would like and share opportunities for patients to get involved in research.
Please join us and share ideas from the patients, family & friend’s perspective - we invite and encourage everyone to get involved - you can even find us on Twitter and Facebook!
To register and find out more about our Patient & Public Engagement Events you can email us at PPE@birdbath.org.uk or call 07763 743322.
PPE Leaflets & Questionnaires
At BIRD we know…
Patients love to talk to other patients, learn as much as possible about their disease, share their experiences & have a say in the things that affect them. It’s not easy to find other patients to connect with or find a local support group or to source information & keep support groups going.
We want to connect with you and understand your wants & needs - please take a few moments to download our questionnaire (click on the picture to the left) and have your say!
To download our leaflet full of information about PPE, please click on the picture to the right!
After two very successful start events, we are now in the process of developing this more of our exciting programme for public & patients. To keep updated, revisit this page, check out our social media pages, email us at PPE@birdbath.org.uk or call 07763 743322.
Local Support Groups
PsAZZ - PsAZZ was formed in 2011 after a group of people met through one of BIRD's patient information days. BIRD helped the group to get started by providing a room for them to meet in, refreshments and, later, help with things like printing leaflets and supporting awareness campaigns. The main aim of PsAZZ it to connect, share & support each other. Over the years they have met informally and have their own newsletter 'PsAZZ News'.
New members can sign up and become involved in whatever way they like, either coming along to meetings & events or just by keeping in touch by email.
From July 2016, meetings will be held every second Wednesday of the month in the Lecture Hall, RNHRD, Bath 10am-1pm - all welcome.
If you would like to join the group, or to find out more about PsAZZ;
www.papaa.org - Psoriasis and Psoriatic Arthritis Support (UK)
www.arthritisresearchuk.org - Arthritis Support UK
www.arthritiscare.org.uk - Arthritis Care
www.psoriasis-association.org.uk - Psoriasis Foundation
www.psoriasis.org - National Psoriasis Foundation
www.psoriasense.co.uk - Psoriasis and PsA Information
www.arthursplace.co.uk - Arthritis Support for young adults
www.nass.co.uk - NASS National Ankylosing Spondylitis Society
www.psazz.wix.com – PsAZZ Local PsA Support Group